top of page
Rachel and Jessica

Rachel SITBON born September 11  2012 in Paris, during pregnancy no anomaly  was detected, _cc781905-5cde-3194-bb3b-1365cf58d from Rachel detects a Cuti 

Congenital marmorata on the infant,   she informs the pediatric department of the maternity hospital Robert Debré._cc781905-5cde-3194-bb3b-136_bad5cf58d

No doctor offered to auscultate the infant, cruelly lacking  knowledge and experience of Adams Oliver syndrome.

 

It was during an emergency consultation at the Robert Debré hospital   that his two CIVs were  detected. Genetics and dermatology consultations follow at the hospital Necker,   and a Cutis marmorata is confirmed.

 

To date Rachel is still awaiting a total exploration (hepatic, hematology, cardiac etc...)

 

Jessica SITBON born on November 26, 2013 in Paris   at the Robert Debré hospital, three CIV  cardiac injuries and microcephaly were _cc781905-5cde-3193-bb5dtec_badtecf_detected fetus, an IMG (medical interruption of pregnancy) is offered throughout the pregnancy. 

 

To date Jessica is   still awaiting full exploration (liver,  

hematology, cardiac etc.)

 © 2022 - Association Un Miracle pour Noah

6 rue Guynemer - 93260 Les Lilas - France

(+33) 06.85.53.04.78 - Email: unmiraclepournoah@yahoo.fr

Declaration number at the Prefecture of Seine St Denis - France : W931011389

Our partners

Institut Imagine
Gli'Hope.jpeg
Neshamots.JPG
a gift for life.jpg
Les Rois du Monde
FC Les Lilas.JPG
bottom of page