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United for Noah

Together for a unique

healing in the world in New York

* to watch this video in English click here

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PAIEMENT SECURISE

Noah, 13, was born in France with Adams-Oliver Syndrome, causing a huge hole in his skull and hemorrhaging.

Abandoned by French and international doctors, only NYU Hospital agreed to take on his rare and complex case.

 

On July 7, 2021, with the help of the Lord, Dr. Staffenberg and his team performed a 14-hour surgery,

unique in the world on a child affected by this syndrome.

 

Today, after 6 operations, Noah's future rests entirely on these dedicated doctors.

We are forced to remain in the United States, awaiting further operations with the hope of a complete recovery.

 

Our treacherous fight leads only to New York.

Your support, whether financial or social, is crucial to giving Noah a better life.

Together, let's support Noah and his family until the end!

AN OPERATION
FULL OF HOPE

#TogetherSaveNoah

Noah, suffering from Adams Oliver Syndrome, has bone deficiency and skin aplasia on the skull, leading to infections and hemorrhages.

Gli'Hope found a surgical team in NYC to save him.

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Noah'S blog

in New York

Periodically find news from Noah, the association, and the progress of our projects in New York

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Media
are talking about it !

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Find us on our Youtube Channel 

05/27/2021: TPMP broadcast on C8
05/14/2021: Football Show on Beinsport TV
05/07/2021: TPMP broadcast on C8
04/28/2021: Coffee Show on Radio Mouv

Blanc sur Tirets

The Association

  • Raise awareness of Adams Oliver syndrome, which Noah suffers from.

  • Break the isolation.

  • Fund unsupported examinations and operations.

  • Cover examinations and interventions abroad.

  • Cover transportation and accommodation costs.

  • Support a national and international research protocol.

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Noah's Story

Noah was born on 06/18/11 by cesarean section in a clinic in the 11th arrondissement of Paris after 19 hours of labor. It weighs 2.94 kg and measures 47 cm. Two hours later, his dad, already the father of two boys, immediately noticed that something was wrong.

Discover his story...

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Adams Oliver Syndrome

Adams-Oliver syndrome is a rare disease associating congenital anomalies of the limbs and scalp, often with ossification defects of the skull.

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Your support

"Hello!!! We pray for Noah!!! Give us some good news" - Estelle A. via Instagram

“Courage Laetitia, you are accompanied by the best doctors and all the love of your loved ones - please everything will be fine 🙏😘” - Véronique H. via Instagram

“I love your smile, I never get tired of it!” – Elodie T. via Instagram

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July 7, 2021 - Support from around the world for Noah's first surgery in New York

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